The first day I tried it, I probably rubbed it into my lips 6 or 7 times a day, maybe more. * Detox. It would take away the redness of my skin but that only lasted a few days. The sensation is very similar to olive oil. It does keep it at bay with regular rubbing off of dead skin. During the years we were together my lips looked and felt pretty normal. So far nothing have happened, either good or bad. . Then every second day for two weeks. This is the summary of my trial with Protopic 0.03%. That did not help. Has not been confirmed OR refutated. They are often a little dry, but feels and looks almost completely normal. The lips got a little better at first but soon turned bad again. Wow, the Facebook Group is up to 89 members. So, stress is something that we are all exposed. I was feeling pretty calm during that time, but sometimes stress reactions can appear when you finally slow down and rest. You should try to clip the hanging skin in an effort to try not to damage the skin still attached. As far as I remember I only treated my acne with a cream (I have forgotten the name of the brand). The next week, i had pain in my # 14 tooth but ignores it because I had a dentist appointment the following Tuesday. To seal it in I put on some vaseline about 5 minutes after the hydrocortisone, and let that sink in for an hour or 2 before I did the cycle again. Lower lip is still peeling, about every 3th-4th day, but only small, thin segments of skin. It did not help at all. As the years goes by the lips slowly become better. Exfoliative cheilitis is a rare—yet benign—medical condition that results in thick, dry, and flaky skin on the upper, lower, or both lips. Send a friend request (not just a message!) And I actually got better within a few days. I contacted a brittish doctor (#6) and saw him about 10-12 times during my stay. My lips slowly slowly started to get a little better during this year (less swelling, a little less redness), although the peeling of my lower lip never stopped. I stopped immediately but the symptoms remained. Published in: British Journal of Dermatology Volume: 151, Pages: 241-242,Year: 2004). I think I had dry lips sometimes, and I probably licked and bite them once in a while, but not on a regular basis. I started to use a new mouthwash when i moved into my apartment. Work your butt off. Furthermore on some days the skin around my lips would be red, swollen and itchy. Exfoliative Cheilitis has changed me and is still changing me. I removed this filling a couple of years later but the symptoms remained. I did this for four week without any positive result. I have to moisturize at least every hour. Exfoliative cheilitis is characterized as an inflammatory condition of the lips in which the skin of the lips become chronically inflamed, crusty, and sometimes fissured. * Stress. Send a friend request with a message to my, Right now there are eight brave members in the group from at least four different countries. I also had a sore mouth on the inside and as a result of that, most of the day a burnt tongue, which made it difficult to eat. He gave me another steroid creme called Kenacutan for me to use for two weeks. 3. She wants to use the same we have here, because she has read that Calendula plant in Brazil may have different properties. She was not so sure my recent problems was cause by the HSV-1, but believed I had the right diagnose for my peeling lips (exfoliative cheilitis). During 2004 I used vaseline as my moisturizer. (only very wild guesses, I don't really have a clue). * This herpes cycle continued for about four weeks until I met another doctor who told me that sometimes you have to eat medication for six months to really supress the HSV-1. I got some new mails about a month ago; she could now provide me with the specific formula used in their study. It was probably oral hepers according to two doctors. If the skin is loose somewhere it usually peels when I bring the cotton swab to that area or when I rub my lips against each other. It disappeared after a couple of days, came back a month later and then disappeared again. She gave me Valtrex (500mg twice a day for five days). I have been out of the blog loop for a while, sorry for the delay everyone. Up until June 2009 my lips were almost back to normal. It is a chronic condition that involves general discomfort ranging from itching, burning, dryness to cracking and flakiness of lips. If you have not joined already, please consider it. Every once in a while I get a flare up for a week or so. He told me that my lips probably had been dry and that (unspecified) bacteria had settled in and caused an infection. The main purpose of the group is to get an idea of how many of us there are in the world - right now - dealing with Exfoliative Cheilitis. The only thing I have noticed is that the skin underneath the peeling skin might be less raw than before. I think it its important to consider emotional distress. I also took a blood test to see if I had any vitamin. I do remember one time when I stayed home from school because my lower lip was slightly swollen and felt strange. I have also used Borage oil for the last three weeks but I have not noticed any significant effects yet. She told me to use Hydrocortison steroid cream on my lips. Exfoliative cheilitis (EC) is the inflammation of the lips which is an exceptional chronic condition and is basically the eczema of the lips. I don't know the reason for this, but instead of speculating about it I am just going to try the treatment so I can cross it off. What is exfoliative cheilitis? About two month ago I found the fairly new case report, According to the case report "topical Calendula officinalis ointment 10% has successfully cleared the condition", in just 15 days. One member (who is an biomedical student) posted quite an extensive treatment protocol that I'm going to try when I get to it (I have saved that post as a doc in the Group files). He told me that my lips probably had been dry and that (unspecified) bacteria had settled in and caused an infection. Skin underneath is raw and very sensitive. This is probably one of the better remedies for this condition. By continuing to use this website, you agree to their use. * I also visited a dermatologist. I caught it while trying on a drugstore lipstick which had not been properly cleaned. hey is dis condition not curable at all???? It made all of the crusts come off really easy. I finished my antibiotics and went for a check up today. I have done about four this year and have never experiences any problems though. I will do a trial with Protopic, I just need to prepare myself mentally and regain some energy first. Hi, my name is David and live in Sweden. I have not noticed any significant improvement so far. I'm hesitant to Protopic for two reasons: first I'm not really up for a potentially worsened condition right now since I'm low on energy and have a alot of social activities planned for the comming weeks. cheilitis. Due to Facebook's configuration I can only invite you if you are on my list of friends. Both lips become dry if I don't use a lip balm. On day 5 and 6 my lips look their best. A big thank you to Aksh for creating this, and a big hug to all of you - hang in there! No more appointments, no evaluation of the treatment, no further tests. We are the ones that decides what define us. I may edit this post every now and then. Causing inflamed lips, exfoliative cheilitis is also characterized by rapid and continuous peeling of the lips. I used the vaseline every day and gently rubbed off any loose skin. Lips status: nothing new to report. She told me to use vaseline instead of olive oil and hope for the best. Two months before my first symptoms appeared I did a root canal dental operation. This doctor also sent my file as a referral to the Karolinska Institutet skin department in Stockholm, to examine my peeling lip condition I had told her about. I have not noticed any significant improvement. More? My lip care routine has progressed over time since getting exfoliative cheilitis. One morning november 2003 (I was 19 then), I woke up with a swollen and chapped lower lip. This is one of the drawbacks with a Facebook group: information - good or bad - is eventually lost or pushed out of sight, until it gets repeated a couple of day/months later. The lips got a little better at first but soon turned bad again. This means fewer updates (not that I do that very often ;), and it will take longer for me to respond to the mails, comments and Facebook request. My primary Doctor had no idea what was going on with my lips and highly suggested that I follow my dermatologist orders. This is my conclusion. It usually settles after about 2 weeks. Here, the outermost layer of skin cells is in a continuous state of sloughing, which makes the lips unable to retain moisture or heal themselves. Human touch boost the immune system, maybe that is why my lips were so healthy during 2006-2009? I got my herpes symptoms after the first week I moved in. I started this blog 2009 to create something meaningful from this experience. :). This doctor also sent my file as a referral to the Karolinska Institutet skin department in Stockholm, to examine my peeling lip condition I had told her about. If I don't do any manual peeling the skin builds up and whitens. * Long term stress. I stopped the mometasone because I read steroid creams can thin the skin. It took a couple of days before I could met with a doctor and during this time my lips got worse (more red, warm, inflamed, chapped, more crusts). He said my lips would turn back to normal in just a couple of days. This is what my lips looks like today. We met a couple of hours after that and he could not understand what I had been ranting about. My thought process was this: first, the bad bacteria had to be killed (alcohol). * Root canal filling. You can fight it. * I finally managed to get an appointment to the clinical skin specialist department in my city and there I met doctor #5, which was supposed to be the authority in this field. I also noticed that the skin didn't really peel, it just stuck and got thicker. He gave me all sorts of antibiotics and mouthwashes but nothing helped. I write this two months after I ended the trial and my lips are not better nor worse than before. There is much activity on the Facebook Group wall: members post questions, treatment routines, encouragement etc. When I finally managed to gently peel it off the skin underneath was red and raw. Maybe my lips could not handle the dry winter air? In a couple of hours it grew and the lip turned red. I like to ask the patient how are all parts of his/her life; like: mental, physical, spiritual, sexual, social, emotional, familiar, work.. For you I would ask to test thyroid hormones. If you have any questions you can post them in the comments field and I will try to answer them as soon as I can. • Exfoliative - obsessive-compulsive with no intent of gain. * Between the first and third doctor, I had a meeting with the skin doctor at Karolinska Institutet skin department. He said my lips would turn back to normal in just a couple of days. I blog VERY occasionally nowadays. My lip status is pretty much the same as in the last post; the skin on my lower lips peels in thin flakes. I believe that I gave myself exfolivative cheilitis after a couple years of anxiety picking the skin on my lips and never giving it a chance to heal, now my lips peel over and over constantly no matter how long I leave them alone. s you all know I blog very rarely nowadays, or check my ec-mail inbox – but it do happens! Contact me on: exfoliativecheilitis [at] gmail [dot] com The ointment is yellow, medium thick and melts quickly on your lips. Some individuals on the forum have reported that their exfoliative cheilitis first worsened for a couple of weeks before they saw any improvements (if any). During 2001-2002 I was very depressed for many different reasons, acne being one of them. The term "cheilocandidiasis" describes exfoliative (flaking) lesions of the lips and the skin around the lips, and is caused by a superficial candidal infection due to chronic lip licking. * I also visited a dermatologist. He also told me to keep the lips smooth and recommended regular olive oil. * The next week I visited doctor #4, He did not know what to do and did not give any treatment at all, but he put me on a waiting list to a skin specialist doctor. Doctors prescribed hydrocortisone or strong antibiotic creams, all to no avail. ... “Value of Openness” Blog. The cream made the flakes on my lower lip yellow. This is one of the most painful experiences in my life so far. I also got a sore throat. He was really dependent on his mother, although he was already 18 years old. Expert advice must be sought as with this condition there may be a chance of fungal infection in the mouth. A while ago I created a poll where I asked the members how old they were when their exfoliative cheilitis first appeared. deficiency but it did not show anything unusual (I was currently experimenting with a vegetarian/vegan diet). 200mg (one tablet two times a day for two weeks) + no dairy products. Up until June 2009 my lips were almost back to normal. Lower lip peels on a daily basis. I have only used my. We have to find ways to deal with it. My lips have been good the last couple of years. We have more cases treated with Calendula that showed good results. He gave me a mometasone prescription. I have not read this report myself in it's entirety but you'll find what seems to be a summary in a forum post, You can read the Protopic Patient Information Leaflet in it's entirety, You may not use any images on this site for, Lip status and treatment routine as of 2014, Facebook group is up to 68 members (plus some short news). Hi! My lips are slowly feeling better on the inside, but it is a slow process for the lips to heal. I have not read this report myself in it's entirety but you'll find what seems to be a summary in a forum post here. I started this blog 2009 to create something meaningful from this experience. Skin on lower lip starts to build up into yellow/white crusts, and does not peel as easily as before. But on the whole pretty the EC is pretty stable. But there is room for more - so come on people, join! I was contacted by Daniel on Facebook and checked out his blog. 95% of the time my lips looks normal and no one else than me notice the peeling. Basically she told me "we can't just do random test in order to find anomalies, and there is not enough people with your condition to initiate any research". I was very hesitant to try Protopic as I wrote in this. I have not got any treatment time limit so I will have to book a phone meeting with my doctor and ask. at my local hospital: dental materials, food (mostly fruits and greens) and food additives. I will not go into details about the discussion I had with the doctor about how to proceed with an evaluation of the treatment, new tests, research etc. This is the most important purpose of the group. • Factitial- if the behaviour triggering the condition is attention-seeking. The dermatologist recommended a food allergy test (I went to my primary Doctor to do so, they did a blood test and nothing came up) and said that the sensation I was feeling was an allergic reaction and to never drink that drink again because I'm allergic to one of the chemicals they add into it. She told me to use. I had visited McDonalds and I remember having some trouble eating the fries because the salt created a stinging sensation on my lips. This means it will not show up on your profile information page. Read more about that in the, As an experiment to attract more members to the, I have now made it secret. About two months before I got my first symptoms in June 2009 I experienced a very stressful spring because I ended my realtionship with my boyfriend. Here is the list: tablets 200 mg (one tablet three times a day for two weeks) +, 250 mg (2 tablets three times a day for two weeks + Daktarin oral gel +. Have a doctors appt. Since the chinese doctor had trimmed my lips and I had started to use vaseline again my lips actually looked pretty decent. If you wish to register and upload some pictures, I can give you an opinion and discuss treatment options. Exfoliative Cheilitis is a condition described by the swelling and dryness of lips. So please take a couple of minutes to fill in your answers. I moved out and stayed at family and friends for about a months before I could move into my own apartment. As you might have guessed, this blog is currently on hiatus; I have a new job that is taking most of my time and energy. They still peel each and every other day but usually only thin flakes. It did not help at all. * Doctor #9 gave me the creme Unguentum M. Did not help. I probably met a couple of more doctors and dermatologist, but I don't have any notes from that period. We know that our support is part of the treatment too. They get dry, the lower lip peel, the skin underneath has been a different variation of "raw" (from mild to very raw – no blod though). Again the symptoms disappeared - and came back again when my medication was finished. I got my herpes symptoms after the first week I moved in. He also said that the antibiotic I was perscribed mad my issue worse, as that encouraged the discoloration, because the histamine and antibiotics were having a war in my lips. My peeling cycle is pretty much the same as stated in the. I have not noticed any improvement, my condition is pretty much the same as before. * Citric acid. Two days before the outbreak I ate a rhubarb for almost an hour and got a lot of citric acid on my lips. Fordyce spots starts to appear on my upper lip during the year. Less hugs and kisses (since I broke up with my boyfriend). I went to get the root canal and had that taken care of. It all started when I was 10 years old. I'll stay in touch every now and then! I understand that this is the way things go (I have studied scientific theory and experimental design in university), but it made me angry and upset anyway. That's when I decided to go to a dermatologist. I did not go back, and I started to use vaseline again. During 2001-2002 I was very depressed for many different reasons, acne being one of them. They still got dry and my lower lip peeled, but much slower than in the beginning and less and less frequent, about every 3-4 days. Factitial cheilitis is a rare diagnosis of exclusion that occurs most frequently in young women with a history of anxiety disorders and recent psychosocial stressors. I wake up one morning with very dry, red, inflamed lips. I called my dentist, he wasn't available till Tuesday and they recommend that I go to the emergency room. histamine antagonist). Privacy & Cookies: This site uses cookies. She did not know what to do and gave me. She also admitted she had never seen anything like it (I had decided to stop using my lip balm a week before because I wanted to have something to show her), had never heard of it or knew how to treat it. That's pretty awesome. The Facebook group is currently up to 173 members - wow! Since january 3 fifteen more people have joined, and the group is now up to 28 members from around the world. Second, there might be a link between Protopic and cancer. Human touch boost the immune system, maybe that is why my lips were so healthy during 2006-2009? * Unfortunately the result did not last. 2. I have had exfoliative cheilitis since 2003. Other than that I focus on eating healthy, regular exercise, doing stuff that makes me happy, stress management, and getting good quality sleep. I should rub this on my lip four times every day for about four days. My boyfriend was very supporting although he probably thought I was exaggerating when I told him the story of my lips. However, a link to Protopic® ointment treatment has not been confirmed or refuted on the available evidence so far.". Currently experimenting with paleo-inspired lifestyle (eating-/exercise/sleep habits etc). I learned so much and this blog is an accumulation of what I learned online from people who I don't know (but am eternally grateful to), from my own experience and what suited me, and what doctors and friends have suggested. Chatting is of course ok! Dermatologic disorders occasionally present as exfoliative dermatitis. There’s a whole community with exfoliative cheilitis online (chapped lips) like myself, dealing with it for more than 20 years. At ER, I had the abcsess trained (still feeling the dryness of my lips) and I was told that I needed a root canal. Just like the rest of you, I am only human :). * I told my first doctor about my lip history but she was pretty sure that it was oral (Herpes simplex virus 1/HSV-1) this time, because she could see very small blisters on my lips. Of course it does not mean you are gone have success using it too. It usually heals up pretty in a day or two. * I tried hypnotherapy (I was given autosuggestions while in a hypnotic - very relaxed - state), for a short while without results. Turn the negativity around and make it into a ladder to climb your goals. I layed off the fruit but nothing happened, but the oil keep the lips from drying out. I hope you understand the formula. The condition cause me to change the way I eat, drink, brush my teeth and wash myself among other things. I have been suffering from exfoliative cheilitis for about three years and it only bothered me in the last six months because before this i just used to pell the dead skin of in the shower. :) I have limit my time I spend on EC to answering friend requests on facebook in order to add new members to the facebook group. I did not get any significant reactions. Basically my lips create large flakes/scales which then peel off (although I usually rip them off before it goes too far as it is unsightly - obviously not the best course of action but hey, it can look terrible). I still use the same beeswax ointment that I have been using for about ten years now. Regular peeling, but very thin flakes. Hi guys. This forms brown scales that may be spontaneously shed or may be removed by the patient. It is a swedish brand and is called "Munkens Bisalva". , and to blog and youtube the results. Factitial cheilitis can present as exfoliative cheilitis when it is due to attention-seeking or factitial behaviour or an obsessive - compulsive tendency to pick or chap the lips (exfoliative). He said he knew exactly what it was: inflammation of the lip - cheilitis. I tried that for a couple of days. I’ve been experiencing exfoliative cheilitis for over 15 years. The skin beneath looks pretty normal, but become dry and starts to harden and crust within a few days. I was very tired after my Wales experience and don't recall so much from 2004 lips-wise. I had a phone conversation with my doctor on 21 december last year and since I had no results with Protopic 0,03% she decided I should boost the percentage: I am now doing a three week trial with Protopic 0,1%. She did a biopsy on my lip (the procedure felt quite traumatic because I was not mentally prepared for it, but it healed completely in two or three days and there is not a single visible trace from it today), and told me that she would contact me in august about the results. Are we 25? , and told me to lay off the fish. This is one of the most painful experiences in my life so far. As I have written in another post I suffered from exfoliative cheilitis for 8 months. Shortly after my last meeting with the chinese doctor I had my first date with a guy I had been talking to for a couple of months on the internet. * I removed my latest root canal filling (I did the root canal operation about two months before I got my symptoms in 2003), without any results. I started to use a new mouthwash when i moved into my apartment. Then every second day for two weeks. I stopped immediately but the symptoms remained. Posts Tagged: Cheilitis Chronic Lip Licking: Exfoliative Cheilitis… April 22, 2020. * My dentist also checked my fillings but could not find anything unusual about them. She did not know what to do and gave me Aerius 5mg (a histamine antagonist). It will take time for it to go away but his advise was that I should have come in to see a dermatologist way earlier. Possible also that the lower border on the lower lip have been a little more red than it was before. Did not help. I have not heard of anyone that was cured completely. However there is one documented case where Protopic have been a successful treatment (, "Exfoliative cheilitis successfully treated with topical tacrolimus", Authors: M. Connolly, C. Kennedy. No more appointments, no evaluation of the treatment, no further tests. But then again, almost everything these days is linked to cancer. * Shortly after that I went to Wales to be a trainee for a company for five months (thanks to a scholarship). I did not go back, and I started to use vaseline again. He listened to my puls and told me my liver was overheated. However the ingredients list says 9 grams, which is 9% of 100 grams. Here is the list: metronidazole tablets 200 mg (one tablet three times a day for two weeks) + Daktarin oral gel, Erythromycin 250 mg (2 tablets three times a day for two weeks + Daktarin oral gel + Corsodyl mouth wash, and finally Trimethoprim 200mg (one tablet two times a day for two weeks) + no dairy products. It seems promising but I only have a few days with it. Maybe I got the HSV-1 there? He stated that I must also use a sealer to like carmex to protect the outside, but time and the antihistamine will heal the damage done to my inner layers of my lips. However there is one documented case where Protopic have been a successful treatment ("Exfoliative cheilitis successfully treated with topical tacrolimus", Authors: M. Connolly, C. Kennedy. He gave me a steroid creme called Kenakort-T. We can do this people! The only thing I noticed was that for a couple of days I got a new fordyce spot on my upper lip, which looked a bit red. I then tried Ketoconazol cream for 2 weeks. Finally I knew what to call it, and I was not alone! I have also used Borage oil for the last three weeks but I have not noticed any significant effects yet. The main purpose of the group is not necessarily to chat but to get an idea of how many of us there are in the world - right now - dealing with Exfoliative Cheilitis. My current dermatologist Dr.Shail Gupta (His website) stressed a lot to me as to not to unnecessarily lick or bite my lips. Human: ) not be visible on your Facebook profile page believe fillings can be the cause allergic. Vacation but I do remember one time when I moved out and stayed at family and friends for ten. Ago I created a poll where I asked the members how old they were 6 months ago lips started trim! # 3 ( a private one ) in another post I suffered exfoliative... 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